Parkinson’s Disease a disease affecting over 80,000 Australians and until very recently, there was little support for people affected by the disease in Griffith.
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Two years ago, a small group got together with the goal of breaking down barriers and supporting those living with Parkinson’s.
For group coordinator Louisa Feltracco and the other members of Griffith’s Parkinson’s support network, the best option is to educate. World Parkinson’s Day will be held on April 11 and folks from around Griffith will be aiming to do just that.
From 9:30am to 1pm the group will be meeting in Memorial Park, handing out flyers and having a cuppa and a chat.
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Mrs Feltracco says Parkinson’s is widespread but seldom discussed.
“Support groups are fantastic because people need to talk to people with the same problem. It can even be good for the carers. It’s a way for them to talk to other people who are also taking care of people,” she said.
The Brain Foundation describes Parkinson's disease as a “a progressive, degenerative neurological condition that affects the control of body movements”. Symptoms include trembling or shaking in the arms, legs, hands, jaw or face and stiffness of limbs.
She says its particularly important for people living in country areas.
“Resources are pretty limited. We have to get in touch with Sydney a lot to talk about what we might need,” she said.
The group offers both practical and emotional support. It often hosts speakers and hold seminars to educate people on things like symptoms and coping strategies.
Mrs Faltracco says the group is still in the process of putting itself out into the community. A recent Easter raffle was lauded as a huge success.
“We had a lot of people come up to us while we were selling tickets and ask us about things or speak with us. It was a really good experience.”
Parkinsons NSW currently employ three Parkinsons nurses in NSW.
